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Cover image of Palliative Care for Infants, Children, and Adolescents
Cover image of Palliative Care for Infants, Children, and Adolescents
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Palliative Care for Infants, Children, and Adolescents

A Practical Handbook

edited by Brian S. Carter, M.D., Marcia Levetown, M.D., and Sarah E. Friebert, M.D.

second edition
Publication Date
Binding Type

There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume.

Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision...

There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume.

Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips.

With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.

Reviews

Reviews

The voices of parents can be heard throughout, enabling the reader to learn what life is like for them and how we as health professionals can support them.

An inspiring and accessible look at what end-of-life care for children should be—it is a text that should grace the shelf of every clinician facing the death of young patients.

A great resource and learning tool... well written, well organized, very practical, and user friendly as a reference for all disciplines involved with palliative care.

This book is rich with palliative care experts’ knowledge as well as humbling experiences of children and their families undergoing the latest stages of a life-threatening illness, the dying process, the death, and finally bereavement. Every chapter is written with a high degree of expertise and the authors’ compassion is ever present.

About

Book Details

Publication Date
Status
Available
Trim Size
6
x
9
Pages
560
ISBN
9781421401492
Illustration Description
11 line drawings
Table of Contents

List of Contributors
Preface
Part I: Societal and Institutional Issues
Chapter 1. Epidemiology and Health Services Research
Chapter 2. Goals, Values, and Confl ict Resolution
Chapter 3. Barriers to

List of Contributors
Preface
Part I: Societal and Institutional Issues
Chapter 1. Epidemiology and Health Services Research
Chapter 2. Goals, Values, and Confl ict Resolution
Chapter 3. Barriers to Integrating Palliative Care and Potential Solutions
Chapter 4. Educational Initiatives
Chapter 5. The Art of Advocacy
Part II: The Cycle of Care
Chapter 6. Decision Making
Chapter 7. Communication Skills and Relational Abilities
Chapter 8. Psychosocial Needs of the Child and Family
Chapter 9. Spiritual Dimensions
Chapter 10. Holistic Management of Symptoms
Chapter 11. Bereavement
Chapter 12. The Other Side of Caring: Caregiver Suffering
Part III: Special Care Environments and Patient Populations
Chapter 13. Palliative Care in the Neonatal-Perinatal Period
Chapter 14. Palliative Care in the Pediatric Intensive Care Setting
Chapter 15. Palliative Care in the Home, School, and Community
Chapter 16. Palliative Care for the Child Who Has a Genetic Condition
Chapter 17. Integrating Palliative Care with HIV Care and Treatment
Chapter 18. Integrating Palliative Care with Pediatric Hematology/Oncology
Index

Author Bios
Featured Contributor

Marcia Levetown, M.D., F.A.A.P., F.A.A.H.P.M.

Marcia Levetown, M.D., is Principal, HealthCare Communication Associates in Houston, past chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine, and a Soros Faculty Scholar Alumna of the Project on Death in America.
Sarah E. Friebert, M.D., F.A.A.P., F.A.A.H.P.M.
Featured Contributor

Sarah E. Friebert, M.D., F.A.A.P., F.A.A.H.P.M.

Sarah E. Friebert, M.D., is Director of Palliative Care at Akron Children’s Hospital, associate professor of pediatrics at Northeast Ohio Universities Colleges of Medicine and Pharmacy, and chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine.
Resources

Additional Resources