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Reviews
Reviews
The editors ought to be congratulated for creating a space that allows us to retell our individual and social stories of dying with dementia.
Books like this, which take a global view of the effects of disease, are much needed. All of us working in palliative care would benefit from reading this book as it exposes assumptions derived from the treatment mostly of cancer patients and encourages us to review our thoughts on the intrinsic value of all life, however opaque.
Offers valuable insights into the philosophy and practice of palliative care in AD from perspectives of a group of American and European experts... It raises important questions and poses solutions to a variety of pressing clinical issues.
This volume is a definite resource for any geriatric care manager... It presents many viewpoints and provides a number of good insights.
Highly recommended for physicians and other health care professionals.
A short book review cannot do justice to the magnitude and worth of this book... It is a compendium of hope.
This is the finest set of perspectives on dementia, Alzheimer disease, and dying that has yet been produced. It combines some of the best thinking in the United States with insights from Europe, making it truly unique. Highly recommended for specialists in dementia care, hospice, and bioethicists.
About
Book Details
Publication Date
Status
Available
Trim Size
6
x 9
Pages
396
ISBN
9780801898396
Illustration Description
6 line drawings
Table of Contents
Foreword
Preface
Acknowledgments
List of Contributors
Introduction. Historical Overview of a Current Global Challenge
Part I: The Health Care Challenge of Alzheimer Disease: Basic Societal, Pathological
Foreword
Preface
Acknowledgments
List of Contributors
Introduction. Historical Overview of a Current Global Challenge
Part I: The Health Care Challenge of Alzheimer Disease: Basic Societal, Pathological, and Clinical Issues
Chapter 1. Darkness Cometh: Personal, Social, and Economic Burdens of Alzheimer Disease
Chapter 2. Neuropathology and Symptomatology in Alzheimer Disease: Implications for Caregiving and Competence
Chapter 3. The Clinical Challenge of Uncertain Diagnosis and Prognosis in Patients with Dementia
Part II: European Voices on U.S. and European Models of Palliative Care
Chapter 4. Expanding the Scope of Palliative Care
Chapter 5. Hospital-based Palliative Care and Dementia, or What Do We Treat Patients For and How Do We Do It?
Chapter 6. Elderly Persons with Advanced Dementia: An Opportunity for a Palliative Culture in Medicine
Part III: Philosophical and Theological Explorations
Chapter 7. Autonomy and the Lived Body in Cases of Severe Dementia
Chapter 8. The Moral Self as Patient
Chapter 9. The Practice of Palliative Care and the Theory of Medical Ethics: Alzheimer Disease as an Example
Part IV: Clinical Ethics Issues: Focus on Patients and Caregivers
Chapter 10. The Tendency of Contemporary Decision-making Strategies to Deny the Condition of Alzheimer Disease
Chapter 11. Advance Directives and End-of-Life Decision Making in Alzheimer Disease: Practical Challenges
Chapter 12. Saying No to Patients with Alzheimer Disease: Rethinking Relations among Personhood, Autonomy, and World
Chapter 13. The Ethical Challenge of Treating Pain in Alzheimer Disease: A Dental Case
Chapter 14. Alzheimer Disease and Euthanasia
Part V: Organizational Ethics Issues: Educational Initiatives, Laws, and Allocation Decisions
Chapter 15. The Role of Nurses and Nursing Education in the Palliative Care of Patients and Their Families
Chapter 16. Ethical Dimensions of Alzheimer Disease Decision Making: The Need for Early Patient and Family Education
Chapter 17. Changing Patterns of Protection and Care for Incapacitated Adults: Perspectives from a European Society in Transition
Chapter 18. Social Marginalization of Persons with Disability: Justice Considerations for Alzheimer Disease
Commentary on Part V: A Clinician's Commentary from a Post-Soviet Society on Organizational Issues of Care for Alzheimer Disease
Part VI: Research Underpinnings for an Ethical Model of Palliative Care
Chapter 19. Biomedical Research in Alzheimer Diseas
Chapter 20. Conducting Research in the Alzheimer Disease Population: Balancing Individual, Group, Family, and Societal Interests
Chapter 21. Drugs and Dementia: Pharmacotherapy and Decision Making by Primary Caregivers
Appendix A. The Declaration of Berg en Dal on Ethical Principles Guiding Palliative Care of Persons with Alzheimer's Disease
Appendix B. Framework for an Educational Module for Health Professionals
Index
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