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Dwarfism

Medical and Psychosocial Aspects of Profound Short Stature

Betty M. Adelson
foreword by Judith G. Hall, O.C., M.D.

Publication Date
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This landmark volume is the first to trace the exciting developments in the field of dwarfism research and treatment over the past century—particularly during the past fifty years. Dr. Betty M. Adelson, a psychologist, has unearthed and synthesized the most significant information about dwarfing conditions, from articles written a century ago to current books and specialized databases.

Highlighting the outstanding contributions of Dr. Victor McKusick and several of his colleagues, Dr. Adelson reveals how dwarfism specialists have helped redefine the nature of medical care—transforming it from...

This landmark volume is the first to trace the exciting developments in the field of dwarfism research and treatment over the past century—particularly during the past fifty years. Dr. Betty M. Adelson, a psychologist, has unearthed and synthesized the most significant information about dwarfing conditions, from articles written a century ago to current books and specialized databases.

Highlighting the outstanding contributions of Dr. Victor McKusick and several of his colleagues, Dr. Adelson reveals how dwarfism specialists have helped redefine the nature of medical care—transforming it from an authoritarian enterprise into a holistic, collaborative venture among physicians, affected individuals, and their families.

The parent of an adult dwarf daughter, Adelson examines the social forces that affect the dwarfism community. She offers personal descriptions of the day-to-day challenges dwarf individuals face and portrays their accomplishments. Insightful and accessible, this work will prove a valuable resource for affected individuals, their families, and medical professionals—physicians, nurses, genetic counselors, social workers, psychologists, and medical students.

Reviews

Reviews

A great leap forward for the social and cultural condition of dwarfism.

Adelson presents tactful techniques and definite guidance, including what not to do.

One of the best, most thorough overviews published on dwarfism and related topics.

I strongly recommend this book: its insights are unique, and it should prove of value to affected individuals, their families, and the healthcare professionals participating in their care.

Identifies the personal and intimate relationship between medical practice and those who have been affected by various types of dwarfism. The author explores both the problems faced and the progress made in the development of scientific and medical aspects, as well as the personal struggles and achievements of those who have these rare conditions. An excellent study.

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About

Book Details

Publication Date
Status
Available
Trim Size
6
x
9
Pages
368
ISBN
9780801881220
Illustration Description
48 halftones, 4 line drawings
Table of Contents

Foreword, by Judith G. Hall, O.C., M.D.
Preface
Introduction
1. Medical Aspects
2. Psychosocial Aspects
3. The Birth of a Child: Parent Issues and Outreach
4. Organizations: From Self-Help to Advocacy
5

Foreword, by Judith G. Hall, O.C., M.D.
Preface
Introduction
1. Medical Aspects
2. Psychosocial Aspects
3. The Birth of a Child: Parent Issues and Outreach
4. Organizations: From Self-Help to Advocacy
5. Lives Today
Appendixes
1. Dwarfism: Conditions and Descriptions
2. Resources: Medical and Support Groups
Notes
Index

Author Bios
Featured Contributor

Betty M. Adelson, Ph.D.

Betty M. Adelson spent most of her career as a psychologist in private practice. She was formerly on the counseling staffs of Queens College and New York University's School of Education. She is the author of a cultural history, The Lives of Dwarfs: Their Journey from Public Curiosity toward Social Liberation.