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Since Owen

A Parent-to-Parent Guide for Care of the Disabled Child

Charles R. Callanan

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They called him Owen. Born on January 3, 1960, he was fair and blue-eyed, and he seemed as healthy as his four brothers and sisters. Today Owen lives in a school for the severely disabled near Frankfort, Kentucky. For his parents, Charles and Mary Callanan, the years "since Owen" have brought a continuing struggle to cope and an unending search for answers. They desperately needed information—information they couldn't always find in medical journals or the out-of-date pamphlets displayed in agency waiting rooms. The more they learned, the more they wanted to share what they learned with other...

They called him Owen. Born on January 3, 1960, he was fair and blue-eyed, and he seemed as healthy as his four brothers and sisters. Today Owen lives in a school for the severely disabled near Frankfort, Kentucky. For his parents, Charles and Mary Callanan, the years "since Owen" have brought a continuing struggle to cope and an unending search for answers. They desperately needed information—information they couldn't always find in medical journals or the out-of-date pamphlets displayed in agency waiting rooms. The more they learned, the more they wanted to share what they learned with other parents. This book is the result.

Since Owen is more than one family's story. It is both a comprehensive guidebook and an information-packed resource for parents of children with disabilities. With compassion, common sense, wisdom, and good humor, Charles Callanan shares what he and his family have learned in the nearly three decades "since Owen"—from one parent to another.

Since Owen explores topics ranging from genetic counseling to placement in an institution, from the many causes of birth defects to planning for the child's future "after we're gone." It describes hospital personnel and procedures. The transition from hospital to home. The daily routine of raising a child with special needs. National organizations and support groups. The child's right to an education—and how parents can fight to make sure that right is upheld. A concluding section looks at the disabled child as an adult and discusses such topics as living arrangements, sexuality, and religion. Most important of all, Since Owen gives families the reassuring message that they are not alone.

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Reviews

Charles Callahan has written what every parent of a handicapped child needs and only such a parent could have written. Thanks to him there now is, at long last, a brisk, detailed, immensely practical guide to the world such parents inhabit.

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Book Details

Publication Date
Status
Available
Trim Size
5.875
x
9
Pages
488
ISBN
9780801839641
Table of Contents

Note to the Reader
Ackowledgments
Introduction
Part I. Before: From Family planning to Birth
Prologue
Chapter 1. What Cuases Birth Defects?
Chapter 2. Genetic Counseling
Chapter 3. Testing before Birth
Part

Note to the Reader
Ackowledgments
Introduction
Part I. Before: From Family planning to Birth
Prologue
Chapter 1. What Cuases Birth Defects?
Chapter 2. Genetic Counseling
Chapter 3. Testing before Birth
Part II. The Hospital: Sometimes It's the Best Place to Be
Prologue
Chapter 4. The Hospital
Chapter 5. Preparing for Admission
Chapter 6. The Hospital Stay
Chapter 7. Hospital Discharge and Some Further Questions to Think About
Part III. It's a New World: Coping with the First Few Years at Home
Prologue
Chapter 8. The Transition from Hospital to Home
Chapter 9. The Diagnostic Cycle and the Person Who Helps You: The Care Provider
Chapter 10. After the Diagnosis
Chapter 11. Emotions and Stress
Chapter 12. Support Resources
Chapter 13. Nutrition and Dental Health
Chapter 14. Safety in the Home
Chapter 15. Financial Resources
Part IV. The Promise of Education for All Handicapped Children
Prologue
Chapter 16. Your Child's Right to an Appropriate Education
Chapter 17. The Law in Operation
Chapter 18. The Individualized Education Program
Chapter 19. The Special Education System
Chapter 20. Postsecondary Education for Handicapped Students
Part V. Life in the Adult World
Prologue
Chapter 21. The Transition from School to the Adult World
Chapter 22. Living Arrangements: Independent and Not So Independent
Chapter 23. The Institution
Chapter 24. The Advocate
Chapter 25. Sexuality and Sex Education
Chapter 26. Recreation, Leisure Time, and Transportation
Chapter 27. Planning for the Future
Epilogue
Appendix A. The Notebook
Appendix B. Aids to Basic Competency
Resources
Index

Author Bio
Featured Contributor

Charles R. Callanan

Born in Albany, New York, Charles R. Callanan has worked as manager of a symphony orchestra, vice-president of a heavy construction firm, teacher as an inner-city high school, and headmaster of a private school near Baltimore. Married for thirty-seven years, he is the father of six children, one of whom, Owen, is the hero of this book.